Diabetes

The O'Sullivan D-Mum

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This is our first parent of a child/young person with type 1 diabetes. We hope to continue our series of profiles for as long as they keep coming in. If you are interested in writing a piece for Thriveabetes please let me know. We’d love to have you! Email me at Grainne@thriveabetes.ie. Don't forget to tell your friends and family about our fundraiser raffle. There are just a few raffle tickets left. All the proceeds of this raffle will go towards the cost of Thriveabetes 2016. Please support us by buying your tickets here. You may even win your accommodation for the conference? Tickets are on sale online until 5pm, Friday, 29th April. Best of luck!

Introducing D-Mum Julie

Julie O’Sullivan is at stay at home mum to two teenagers; Neil aged 19 years and Abbie aged 17 years. She says that she “loves em, but sometimes  ya want to kill em! I think any mum of teens can relate.

The Fabulous O'Sullivan Clan.

Julie’s daughter Abbie had gotten very thin, when she was 11 years old. “I noticed her drinking a lot and she'd complain of tummy aches. I thought hormones, growth spurt, or maybe her periods were about to start when I took her to the doctor.”

When the GP checked Abbie’s blood glucose it was 25 mmols/l. He explained to Julie that they should be within a range of 4 -7 mmols/l. What Julie saw on the blood glucose meter was a big difference. He sent them straight to A&E; “Boy, did we get our brains fried trying to learn it all at once”. Julie felt that her little girl looking at her asking to make it all better mommy but she couldn't.

A blood glucose monitor has now become apart of every minute of the O’Sullivan household daily life.

“The next two years were hard on everyone. Abbie was on a rollercoaster of highs and lows. I was so stressed trying to keep it as normal as possible but anything planned had to suit our injections, meals, snacks, making sure all her stuff was with us at all times. I really felt I lost close friends in that time. They just didn't get that there is so much to do when you have a child with type 1 diabetes. My son felt it was always about Abbie, even though I tried my best to give them both the same attention.

Five years on since Abbie was diagnosed, she has worked so hard with her carb counting. We waited 3 years to get pump and it's not going back. There were some hairy days at the start with her pump but it was SO worth it.

Yes! Being the Parent of a child with type 1 diabetes does change everything. My healthy baby girl is now dependant on insulin for the rest of her days. Our days of just getting up and not worry about blood sugars are here to stay. She is my brave little soldier, just gets on with it, so proud of her.

We are on this Rollercoaster Ride and we are just holding on tight, taking the bumps but enjoying the thrills.”

Julie O Sullivan. Tralee, Co. Kerry

Tour de Type 1 Diabetes!

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James O’Reilly is an up and coming trailblazer, or rather a saddle blazer in both the diabetes and the cycling community . He is currently an amateur cyclist with a view to becoming professional. He was featured in an Irish Times article last December because he took part in the 2015 mHealth Grand Tour which involved a 1,500km cycle with 20,000 metres of climbing over 10 days with 26 riders, all with type 1 diabetes.

He wants to encourage people with type 1 diabetes to follow your dreams, even if it involves professional and competitive sport. There is always a way. 

James O'Reilly

How long have you lived with type 1 diabetes? 

I was diagnosed with Type 1 Diabetes in October 2006. This year, I will have been living with it for a full 10 years. Wow! I didn’t even realise that was happening until you asked me. Suppose I better have a party or something to mark the occasion. Apparently, lots of people with T1D celebrate their diaversaries but that is not something I have ever done. If I want to do it properly I will have to look up the hospital records to get the correct date of diagnosis. And of course I will be expecting presents! Tell us a little about yourself. 

I'm from Kilkenny, received my university education in law at University College Cork and am now working in Dublin, in the area of alternative dispute resolution within the construction industry. Of course, I still like to get down to Kilkenny as often as I can to get out training with my local cycling friends. Cycling; When and how did you get into it? 

My introduction to cycling started with very humble beginnings. In the summer of 2011, I was on a three week holiday in the U.S. based in the coastal resort of Hyannis Massachusetts and found myself needing to buy a bicycle in order to get from point A to B. On my second day there, I bought a child size rigid mountain bike from Walmart for $110 and struck a deal with the woman on the checkout to sell it to her in three weeks’ time for $90 and she would give it to one of her grandchildren. So there was my transport sorted for the total sum of $20. Everywhere I needed to be I got there on that crappy little bike. From one student party to the next, picking up groceries and going up and down the coast discovering a new beach every day to go swimming.

I bought my first road bicycle, when I came back to Ireland, with the intention of getting out and exploring the countryside on two wheels and that is exactly what it was used for over the next two years. For long periods, the bicycle sat dormant in the shed, but on fine evenings, it saw occasional outings for adventures on roads previously unexplored.

It wasn’t until the summer of 2013 that I started riding the bike regularly, completing the shorter routes on a few local charity events. I started taking more of an interest in my diabetes management and my fitness, finding both endeavours to be complementary to each other.

By 2014, I was completing the more serious charity rides with distances in excess of 100 miles and conquering the most demanding hills available.

My standout memory from that year was competing the 160km Tour de Kilkenny. This event is local to me it was something that I had been aware of for a number of years. It was the first serious cycling challenge that I set myself. The route takes riders over some of the steepest climbs in Kilkenny and on that particular day the weather was almost biblical with a full month’s rainfall coming down on us over the course of the day. Temperatures plummeted and most riders abandoned the route, taking shortcuts for home.

I am not ashamed to admit that there were two occasions during the route where I was close to tears. The first was at around the halfway point when at the furthest point from home and shivering like a leaf I started to question if I could achieve my goal. The second was, when at sight of the finish, the emotions associated with realising how far I had come in my diabetes management and fitness to allow me to achieve this goal almost overcame me.

You recently participated in a cycle from Geneva to Brussels, called the mHealth Tour to raise money for T1D research, could you tell us a little about this?

In September 2015, I completed the mHealth Grand Tour, which was a 1,500km cycle with 20,000 metres of climbing over 10 days. 26 riders with Type 1 Diabetes took part in a medico-scientific observational study conducted by Orange Healthcare in association with the Société Fancophone du Diabete.

An Irish based company called ICON Plc contacted Diabetes Ireland looking for a cyclist with type 1 diabetes from Ireland to sponsor. Icon Plc have a large number of employees all over the world and who specialise in conducting medical research trials. I have been a member of Diabetes Ireland since shortly after diagnosis. They offered me the place which I felt very privileged and honoured to accept.

Participating in the tour and in particular the study, gave me the opportunity to actively help the Diabetes community and spread the message that you can do anything you want with Type 1 Diabetes. I had the opportunity to meet some amazing people that inspire me. And, the fact that I was sponsored meant that I had the opportunity to take part in something special that I may otherwise not have been capable of resourcing. The gratitude which I have for ICON Plc and Diabetes Ireland in showing such belief in me cannot be underestimated.

Completing this tour was by no means an easy feat. I was in unknown territory having never done back to back days in the saddle of that length or with that amount of climbing. To my relief I was well capable of the distances and discovered that I really enjoy cycling in the mountains.

 

What are your cycling plans for the future? My goal is to one day compete as a professional cyclist with Team Novo Nordisk. Why? Because I see this organisation as the best place for me to develop as an athlete and as an advocate for achieving your goals with type 1 diabetes.

It would not be an exaggeration to say that when I discovered this organisation it instantly changed my life for the better, altering my attitude to my diabetes and my outlook for the future. It was a day in the summer of 2013. I remember like it was yesterday. I was sitting at a computer in a university library, supposed to be studying for upcoming exams, and I decided to do a google search for “professional athletes with type 1 diabetes” or something similar.

At this time, I was doing rides of up to two hours in duration and because of  the advice from my medical professionals, I thought that it was not possible for a type 1 diabetic to cycle for longer durations. I thought that I had hit my limit on how long I could cycle while maintaining blood glucose control.

What jumped out at me from the search results was two men listed as professional cyclists. I clicked on one of the names. The next webpage listed this rider as a competitor for Team Type 1. I could not believe what I was seeing. Needless to say there was no more study done that day as I proceeded to read everything I could find online about this all-diabetic, professional sports team. I also discovered that there was an Irishman, Stephen Clancy on this team. So, armed with the knowledge that it was possible to be a proper cyclist with type 1 diabetes I set about finding out how to do it.

Later this year, I will travel to Atlanta in the US to attend a Team Novo Nordisk Talent Identification Camp, where I will be aiming to secure an invitation to race on their Development Team. At the very least I will come away with some good information that I will be able to put to good use in my racing and training.

Is there anything else you would like to add?

The only thing I would like to add is a thank you to Thriveabetes for the work that you are doing. I have spoken to a number of people who attended the conference which you held last year and they had nothing but good things to say about it. Hopefully this is something that you can build upon and continue. If such an event was to be held again in 2016 I would certainly be going out of my way to attend.

If anyone would like to follow updates on my training and racing they can find me on:

 

Raffle to Raise Funds for Thriveabetes 2016

Don't forget we are raising some cash towards the cost of Thriveabetes 2016 through a raffle. Please support us by buying your tickets here. You may win your accommodation for the conference?

Type 1 Diabetes; A Rollercoaster of Emotions

Olivia was diagnosed only a short time before Thriveabetes happened last October. She contacted me to try and meet other newly diagnosed people. We met at Thriveabetes and I have asked her to write about her diagnosis because it's so fresh in her head and she is still navigating her way through it.  

Olivia Pyne 2I am Olivia Pyne from Youghal, Co Cork.  I work as a PA for Gas Networks Ireland in Cork City and I have a son Daniel who is 11 years old.

I was diagnosed with Type 1 Diabetes in June 2014 at 46 years of age, so almost 2 years now. Approximately 18 months prior to that, I picked up a tummy bug that just didn't go away so I felt unwell for much of this time.  I was under a lot of stress at the time.  I had belly ache, wasn't enjoying my food, was losing weight I didn't need to lose and had no energy.  In March 2014, I was diagnosed with Type 2 diabetes, I didn't know anything about Diabetes at the time (boy, was that about to change!) so I did my research and decided I would manage it with diet and exercise, even though I already had a healthy lifestyle.  I remember thinking at the time, I will just have to eat healthier and exercise more!  

Over the next 3 months, I went from trying to manage it with diet and exercise, to taking glucophage, to adding diamicron - and all the while my blood sugars were rising and I was losing even more weight and feeling truly awful.  By this point, I was feeling so unwell I was unable to go to work and finally ended up in hospital with DKA.

I can still vividly recall the moment the Consultant told me that I probably had type 1 diabetes (I had to wait 6 weeks for the GAD antibody test to confirm) and I would be on insulin for the rest of my life.  The utter shock and disbelief that this was happening was the feeling I had and that it surely must be a mistake.  I can remember having to inject myself that first time with the nurse, and how kind and patient she was with me - Joan was her name.  Being told I had type 1 diabetes was one of those life defining moments like when I went into premature labour 10 weeks early with my son or when I got the call to say that my brother had died.  The sheer terror of the moment and what was to follow and the valley of tears.

I remember the consultant telling me that the diabetes came as a result of the tummy bug, and that I would start to feel better very soon.  It didn't register at the time but he was right. Since starting on insulin, I have bucket loads of energy, and I don't have any more tummy troubles.

I have to say the first 18 months were rocky to say the least, it has been a rollercoaster of emotions - you name it, I have felt it.   

Being a late onset diagnosis, I have found that losing spontaneity was a huge thing for me initially and I would panic about making arrangements etc but isn't it amazing how we adjust with time, and it has gotten easier. I have hypo anxiety and as a result of that, I have been hyper vigilant and really it has been overwhelming at times.  I don't sleep well and this is probably my main issue now. I do have a lot of energy and wonder sometimes if it is the insulin that keeps me awake but the professionals tell me it is more then likely to be anxiety. Maybe it is a bit of both.  I live alone with my son so that is probably a factor too.  I would love to hear from anybody who is having similar issues or who has overcome them?

I feel I have come a long way since diagnosis, ask my family and close friends and they will tell you what's it's been like!  I have looked for and accepted support from many places and I feel that each has been a stepping stone in my gradual return to normality.  And my wonderful son, he is so wise.  When he says things like "I think you should relax about the diabetes mam, it will be ok you know", it stops me in my tracks and I think he is so right, take a chill pill and live life.  Olivia Pyne 1

I am starting to find my way with diabetes on board, and I'm making it my friend.  The positives since diagnosis are that I've taken up running 5k a few times a week, I am more conscious of what I eat and I bake my own low carb cakes and cookies and they are delicious!  I listen to my body more and meditate regularly.  

Looking back to when I first starting feeling unwell, I had a lot going on in my life and was under considerable stress.  I was juggling a lot of plates - I was a working full time mother with a commute to work long days, I was also studying for 2 years for a Diploma in Parent Mentoring at UCC so a lot of deadlines to meet.  I think when we put our bodies under long term stress, if we don't take heed and slow down, our bodies will let us know, and messages come in the form of illness.  So I will be taking care of myself from now on!  

I hope that by telling my story it will help someone out there that is struggling with a new diagnosis. I would encourage those people to reach out to others with diabetes and also find a good therapist who will help you come to terms with the psychological impact of this life changing condition. It does takes time to adjust and it really does get better, so please hang in there!

 

I want to thank Olivia for volunteering her diabetes story for Thriveabetes and for her honesty about how she feels. Reading her words brought me back to when I was in the first months and years of living with diabetes.

And remember, Type 1 Diabetes is more common in children but that does NOT exclude adults from being diagnosed. Please click on this link for the symptoms of type 1 diabetes.

 

Raffle to Raise Funds for Thriveabetes 2016

Don't forget we are raising some cash towards the cost of Thriveabetes 2016 through a raffle. Please support us by buying your tickets here. You may win your accommodation for the conference?Buy ur raffle tickets here