DIY Diabetes Technology Day Presentation Videos
All videos were recorded, prepared and edited by Keith Garland and we owe him huge thanks!!!!
All videos are broken down into the separate presentations for easier viewing below. And if you would like to watch through our YouTube Channel here. If you do watch through YouTube please remember to like and subscribe to our channel. Thank you!
DIY Diabetes Technology Day was organised by the OPEN Diabetes Project, the Insight Centre for Data Analytics in UCD and Thriveabetes. We discussed DIY Diabetes technology solutions (such as Nightscout, Open APS, Loop, Xdrip, Spike, etc) and it was attended by people with type 1 diabetes, health professionals and industry.
Video 1: Welcome and Introductions
by Gráinne Flynn, co-founder of Thriveabetes.
Video 2: The Why, How and What of Do-It-Yourself Artificial Pancreas Systems DIYAPS
by Dana Lewis:
Dana is a creator of the “Do-It-Yourself Pancreas System” (#DIYPS), founder of the open source artificial pancreas system movement (#OpenAPS), and a passionate advocate of patient-centered, -driven, and -designed research. Read more about Dana here
Video 3: DIY APS on Android Phones
By Adrian Tappe
Adrian Tappe is a computer scientist and very involved in the voluntary development of open source apps and tools that help people with type 1 diabetics. He was diagnosed with type 1 in 2004. His engagement in the #WeAreNotWaiting community began in 2014 when he joined the NightScout and xDrip development team to help parents, caregivers and patients make better use of their CGM systems including remote monitoring and integration into every days electronic devices breaking the barrier of medical devices and the reality patients live in. He is now one of the main developers of AndroidAPS.
Video 4: The OPEN Diabetes Project:
“Outcomes of Patients’ Evidence with Novel, do-it-yourself artificial pancreas technology”
By Shane O’Donnell
Shane is the co-ordinator of the “OPEN” project which brings together an international and intersectoral consortium of patient innovators, clinicians, social scientists, computer scientists and patient advocacy organizations in order do investigate various aspects of Do-it-Yourself Artificial Pancreas Systems (DIY APS). Shane has lived with type 1 diabetes for 15 years and works as a researcher in the Centre for Data Analytics in UCD.
The OPEN Project is “Outcomes of Patients’ Evidence with Novel, do-it-yourself artificial pancreas technology”.
Video 5: DIYAPS in the Clinic and Research
By Katarina Braune
Katarina is Medical Doctor and post-doctoral researcher, Global advocate and spokesperson in diabetes. Read more about Katarina here.
Video 6: Q&A with Dana Lewis, Adrian Tappe, Katarina Braune and Shane O’Donnell
Video 7: Diabetes Technology Uptake in Ireland
By Kate Gajewska
Kate is a Psychologist, post-doctoral researcher with Royal College of Surgeons in Ireland, diabetes educator. Kate has been living with type 1 diabetes for over 30 years and was diagnosed at age two and currently lives in Dublin with her husband and 2 year old daughter.
Video 8: Access to Diabetes Technology and DIY APS
By Ronan Canavan
Ronan Canavan is a Consultant Endocrinologist in St Vincent’s University Hospital Dublin and former Clinical Lead in the National Clinical Programme for Diabetes.
Video 9: Q&A with Ronan Canavan and Kate Gajewska
Video 10: Diabetes Parenting with NightScout
By Keith Garland
Keith Garland lives in South Dublin with his wife Shirley and they are parents to 6 kids, including a 7-year-old boy (Geordan) who was diagnosed with T1D aged 2. Keith is an IT Project Manager, a licensed "radio ham" and a self-confessed hacker! They have been using a range of DIY solutions since 2015 to help with the management of Geordan’s condition. With a keen interest in electronics and telecommunications, Keith has also created some unique bespoke DIY solutions for their son so he has a unique perspective as a carer embracing these technologies.
Video 11: My Journey to DIY APS Looping
By Tomás Mahony
Tomás Mahony: Tomás was diagnosed with type 1 diabetes in 1999 and lives in Waterford with his wife Tara and four teenage boys. He is an Electrical Engineer and comes from a farming background. He has recently been recruited into the MAMIL brigade having taken up cycling and triathlons. He has been using OpenAPS since November 2018 and finds that this compliments his low carb lifestyle. He is grateful for all the help that he has received in setting up his closed loop system and is happy to ‘pay it forward’.