Daily Life

Summer Music Festivals, Type 1 Diabetes and what to know?

It’s Summer and it’s also the start of music festival season. This was kicked off with GunsnRoses in Slane Castle on Saturday 27th May. We have Longitude, Electric Picnic, Castlepalooza, yet to come. You bought your tickets for the gig, sorted your transportation and accommodation, etc. One of the last things you will probably consider, if you even think of it at all, is having a plan for dealing with the restrictions placed on bringing in food and drinks to these events when you have type 1 diabetes.

I would like to thank those who posted about this topic in the private “Diabetes in Ireland” facebook group. I asked posters if they would allow me to share their experiences for the benefit of new event go-ers or new to these restrictions. In particular, Sinead Murray who emailed the event promoters information to me.

The first thing you need to know about these events is that it’s standard practice, especially the ones where there are food and drink vendors inside, that people are NOT permitted to bring Food/beverages into the event.

At the recent concert in Slane Castle, it was “Strictly NO REFRESHMENTS IN HARD CONTAINERS (cans, plastic bottles, glass) – even those containing water / non-alcoholic liquids in them.” From Slane Castle's website.

What does this mean for people with type 1 diabetes who would need to carry fast acting glucose, which may be in liquid form and carb snacks for low blood glucose emergencies?

This means that unless you have thought to make arrangements that you will most likely not be allowed to bring in bottles of Lucozade, it will be confiscated. You will need to have a backup plan. And if you want to bring your Lucozade in with you either contact the event promoters or get a doctors letter that states that you need to carry food on you at all times. Plus, it's no harm to have the letter state that this includes Lucozade for medical emergencies.

Some of the posters who shared said they either didn’t bring any hypo supplies or food with them but bought some when they got inside the venue. Another poster said that they just brought whatever they needed in a small inconspicuous bag and had no issues. Another poster had Lucozade confiscated.

The first response from Slane Castle Event promoters was that if you had a doctors letter they would allow you to bring in food but still not in hard plastic containers and certainly no Lucozade. They also said that they would accept a copy of the correspondence. Later, this was followed up by a second email with a reversal on the Lucozade stance.

 

I have compiled some information on going to music festival from some other websites and here are a few recommendations as a person with type 1 diabetes. (Updated since I received some new information from a member of the diabetes online community on 31-5-2017)

 

Get a letter from your GP Yes, I know it’s a pain in the behind but if you get one letter you may be able to use it for a number of concerts and maybe for a number of years. Make sure that your letter states your need to carry food on you at all times.

The people on security will know NOTHING about diabetes - nothing relevant anyway. Don’t judge! And definitley don't bank on security being understanding. Explain with a “kill em with kindness” attitude that your food is only for medical emergencies. As a person with type 1 diabetes your blood sugars can go low and you need to treat it with fast acting sugar.

Contact Event Promoters

This is a really good idea because you may be able to avoid getting a letter from your GP and as a bonus you are education one customer service person at a time, maybe even a whole customer service department :-O, at a time. When you contact the promoters explain why that you carry medical supplies such as needles, insulin pens and also explain that you need to carry food and fast acting glucose on your person at all times. The event promoters will most likely respond with "the rules are the rules" email. However, I encourage you to respond to this email explaining again the medical neccessity of having  food and fast acting glucose on your person at all times. At this point, the customer service person may get some outside advise and you will be exempt from the restriction.

Brush up on your Type 1 Diabetes and Alcohol knowledge

This goes without saying. Just google Alcohol and type 1 diabetes and you'll find loads of info on this.

And

Learn from the experience of others Here a couple of blog posts I found that give other useful information;

Diabetes.co.uk Festivals and Diabetes Guide

http://travelbetic.com/2016/04/06/type-1-diabetes-at-camping-music-festivals/

https://beyondtype1.org/your-type-1-guide-to-music-festivals/

 

Of course being of a certain vintage it’s not surprising that I had not come across this information before. I am so passed the days where I rocked out at concerts and most of what I remember was at Feile - The Trip to Tipp! (eye roll) in the 90’s.

Thriveabetes 2016 Schedule & Programme

There is less than 5 weeks until we all descend on the Killashee Hotel in Naas, Co. Kildare on Saturday October 1st. Over 50% of tickets have been sold, we have approximately 38 Adults with type 1 diabetes registered, 53 Parents of children with type 1 diabetes and 25 children with type 1 and their siblings.

And we have published our (long awaited) schedule for our day on the website.

The schedule is divided into 5 sections;

- Adults living with type 1 diabetes

- Parents of children with diabetes

- Childrens' Programme are divided into 3 groups;

* Age 5-8 years

* Age 9-12 years

* Age 13 - 16 years

Anyone aged 16 and older has the choice to join in with the adults with type 1 diabetes or they can choose to stick with the 13 - 16 year olds.

So without further "ado" click here for the complete schedule.

Register Soon for Thriveabetes 2016

Thriveabetes speaker, Gary Scheiner, author of "Think like a Pancreas". Type 1 Diabetes Conference Brings Diabetes Online Community Together. Social media has been extremely beneficial and supportive to people with diabetes in Ireland. We have been connecting with others from all over Ireland through this medium and getting to know their peers online for a number of years. Thriveabetes gives this community of people living with type 1 diabetes the opportunity to meet face to face.

Thriveabetes focuses on the psychological impact of living with a lifelong, chronic illness and it aims to provide “Inspiration, Motivation and Information” to people living with type 1 diabetes, to parents of children with diabetes, to adults with type 1 diabetes, to children with type 1 diabetes and to those who love us.

The conference is being organised completely by volunteers from the diabetes community, and with the support of the national charity for diabetes; Diabetes Ireland.

Thriveabetes Speaker Joe Solowiejczyk & author of “A Type 1 Diabetes Guide to the Universe”

Check in for this is a one-day conference will kick off at 10am on on Saturday, October 1st 2016 in The Killashee House Hotel, Naas, Co. Kildare. However, advance registration is required to attend and people can register for Thriveabetes through this link or email Gráinne Flynn, event organiser, for more information at Grainne@Thriveabetes.ie.

It’s the second Thriveabetes, in 2015, 190 people attended from all over Ireland. This year, we have developed a programme for children and teens with diabetes, and are expecting 300 delegates.

The speakers range from world renowned authors such as, Gary Scheiner, who wrote “Think Like A Pancreas” and Joe Solowiejczyk, author of “The Type 1 Diabetes Guide to the Universe”, both gentlemen are healthcare professionals and have lived with type 1 diabetes for over 30 and 50 years respectively, to local diabetes heroes such as Dr. Anna Clarke, Head of Research & Advocacy Diabetes Ireland and Dr. Kevin Moore, Consultant Endocrinologist Tallaght & Naas Hospitals.

Thriveabetes Speaker Gavin Griffiths, The DiAthlete

We also have Ultramarathon runner, International Diabetes Federation Young Leader and person with type 1 diabetes, The DiAthlete, Gavin Griffiths, speaking to all groups and Penny Robinson, Mum of a teenager with type 1 diabetes, parent representative on the Families with Diabetes Network in the UK, and Part time Lecturer in Leeds Beckett University, United Kingdom working alongside the students on the MSc Advanced Diabetes Educator course to provide the family perspective, will talk about her journey to advocate for her daughter.

Registration for Thriveabetes will close at midnight on Thursday the 29th September. Remember advance registration is required to attend. Register for Thriveabetes through this link or email Gráinne for more information at Grainne@Thriveabetes.ie